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My next steps


Having been diagnosed at a young age my future has been in the back of my mind.  Now I realize that is normal for a young female. I am very healthy, I am very active, but I have this hereditary neurological movement condition that can cause social anxiety. I personally have zero desire to pass on to a future generation. 
Because of that I have made the personal decision with my significant other to not have children.  Having children brings up many different stressors; childbirth then caring for an infant then raising a child and those lovely teenage years.  I know would for a fact these stressors cause my tremors to be exasperated beyond belief.  Some may view this as selfish but, in my opinion, bringing a child into this world who could possibly live a life with tremors would be worse.  Plus, If I do not have yearning desire to be a mother, why would I bring a child into this world?  Now I am a motherly and compassionate individual; often others are surprised by my decision.  I am a currently a full-time Nanny and have worked with children in some form or fashion for the past 5/6 years.  I am very comfortable with my decision.
I do think about my future life experiences often though.  For instance: my wedding.  Standing at the altar, I have always wanted to say my own vows. I don’t want to be doing that while trembling.  Young girls dream of their wedding day and the dress, the church, the cake; while I think about how I'll need to avoid the buffet because if you have tremors you know to avoid buffets or at least bring help; and wearing the shortest heels possible because for high heels are a trigger as well. That may be depressing for some but its reality for me.  
When it comes to Essential Tremors, the future must be thought of to some degree.  ET is progressive meaning it will worsen over time; meaning it will either spread or just worsen in the body parts it is already in.  I was hearing about Deep Brian Stimulation surgery at the age 17. 
Now I would like step back for a moment and remind those who are reading that this condition is not fatal, no it isn’t cancer, it’s not Parkinson but I am writing this blog to let readers out there know their Essential Tremors is a daily struggle.  It affects your mind, body and soul and most importantly you are not alone. 



 My best friend. 

Comments

  1. UnknownMay 23, 2018 at 9:48 PM

    It's nice to meet someone who is going thru this. I've had muscle and nerve problems since my early 20's but the tremors started controlling me about 1 year ago. I've started medication but the side effects are unbearable. Insomnia, uncontrollable crying, anger and blurred vision. God gives me strength each day to carry on. I'm having a lot of issues thinking clearly and remembering numbers and dates. I'm working but it's getting harder and harder. This just seems so unfair.

    ReplyDelete
    Replies
    1. tremor chatMay 28, 2018 at 10:48 AM

      Hi!

      I can relate to your feelings. When they creep up, try your hardest to remember that the Universe only give us what we can bear. He chose the strongest individuals to carry the heaviest burdens. I appreciate your comment and please know you are not alone! Keep Reading <3

      Delete

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